2002 Guest Book
Name: Robert Surowiec
Email: seksik2000@yahoo.com
Homepage: http://www.superonlinecasino.com
Do_You_Have_CF: Yes
Date: 12/30/02
The site is really great! Now it becomes one of my personal Top 3
Name: Josima
Email: jo_play@hotmail.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 12/28/02
Iīm so glad I came upon your page, Iīve been looking for days for information in google, only to be each day more and more frustrated since I hadnīt been able to find a single one that answered all my questions at once. Thank you for the work you do here, itīs truly exceptional.
Name:
Email:
Homepage:
Do_You_Have_CF: Yes
Date: 12/27/02
Hey! I enjoyed your stuff here and hope to be back this way soon. If ya have time, <a href="http://www.headhurt.com">check my site out </a>. Its just a cool hang-out and i bet you have never seen forums like this before- http://www.headhurt.com
Name: julie Farrell
Email: Marju@eircom.net
Homepage:
Do_You_Have_CF: Yes
Date: 12/26/02
Its nice to hear from other people with CF
Name: Tiff
Email:
Homepage:
Do_You_Have_CF: No
Date: 12/20/02
Yancee, from your strong-hearted words you seem to a wonderfully happy man and i know from a woman's point of view she is madly in love you and to stay by your side for the rest of your life. I can only wish you the best.I am a high school senior and doing a report on cystic fibrosis in my biology class.I hope it will be alright if i put your life story in my report because you are one brave man to do everything to stay alive. Tiff
Name: Tiff
Email:
Homepage:
Do_You_Have_CF: No
Date: 12/20/02
Yancee,
Name: Tiff
Email:
Homepage:
Do_You_Have_CF: No
Date: 12/20/02
Yancee,
Name: Tiff
Email:
Homepage:
Do_You_Have_CF: No
Date: 12/20/02
Yancee,
Name: Tiff
Email:
Homepage:
Do_You_Have_CF: No
Date: 12/20/02
Yancee,
Name: Tiff
Email:
Homepage:
Do_You_Have_CF: No
Date: 12/20/02
Yancee,
Name: Tiff
Email:
Homepage:
Do_You_Have_CF: No
Date: 12/20/02
Yancee,
Name: Tiff
Email:
Homepage:
Do_You_Have_CF: No
Date: 12/20/02
Yancee,
Name: lauren rosella
Email: jerosella.freeserve.co.uk
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 12/10/02
how do u treat it
Name: Becca Holtrop
Email: legonb4ever@yahoo.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 12/09/02
An acquaintance of mine who attends my church weekly has CF. She has to take a lot of pills. Her doctors instruct her to eat snacks every day and cough to loosen the phlegm. In the summer, she goes to CF camp and meets other kids her age who carry the same disease. Sadly, she had to deal with the pain in losing her best friend. I highly encourage your efforts to make information available to those who have questions about CF. It can be a ravaging disease, and I can't help but embody a respect for victims fighting it. I am writing a paper on one genetic disorder (optional) for my biology class and decided to research cystic fibrosis to better understand what this girl goes through. That's how I came across your page. Thank you so much for posting this page. Your efforts are greatly appreciated.
Name: Cary Johnson
Email:
Homepage:
Do_You_Have_CF: My Brother Has CF
Date: 12/05/02
cf is a major part of my families life but we dont let it stop us from being a normal family my little brother is only two we look at him as a little chid with extra flem
Name: Janessa Lee
Email: reneejanea2003@yahoo.com
Homepage:
Do_You_Have_CF: No
Date: 12/04/02
I have a friend with CF and it is very sad to see him even though i have not seen him in about 3 months I cant even imagine what he is going through. Till this day i just sit and think about how blessed I am to have him as my friend. When i do see him i have to think about what he goes through and see all the treatments tha he has done when i go visit him. He's 21 and he has had CF since he was 5 years.
Name: Kevin
Email:
Homepage:
Do_You_Have_CF: Yes
Date: 12/03/02
Name: Kelly Renee' Rodolakis
Email: mrsrodo@hotmail.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 11/26/02
My Best friend of 15 years just passed away in September from CF. She was 28yrs old and she lived a life times worth in those years. I really miss taking care of her. I would like to find some CF kids who might need a friend. I don't care the age. Please email me. Kelly
Name: Abby Bartels
Email: phhdiver@hotmail.com
Homepage:
Do_You_Have_CF: Yes
Date: 11/25/02
i've been doing a report on CF for child growth and development class, its easy since i have it. but i dont want to tell everyone that i do. only my closest friends know. did everyone know u have it? i've been tryin to find pictures. if u have any good sites for me to go to please email me.
Name: Abby Bartels
Email: phhdiver@hotmail.com
Homepage:
Do_You_Have_CF: Yes
Date: 11/25/02
i've been doing a report on CF for child growth and development class, its easy since i have it. but i dont want to tell everyone that i do. only my closest friends know. did everyone know u have it? i've been tryin to find pictures. if u have any good sites for me to go to please email me.
Name: TAMMY
Email: TSTRNAD@AOL.COM
Homepage:
Do_You_Have_CF: No
Date: 11/22/02
LOST MY SISTER KIMBERLY TO CF 09/02/1994 2 WEEKS BEFORE HER 25TH BIRTHDAY.SHE LEFT BEHIND A BEAUTIFUL DAUGHTER AND A FAMILY THAT MISSES HER MORE THAN YOU COULD POSSIBLY IMAGINE.
Name: LOLLIPOP
Email:
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 11/22/02
Name: Joshua Diamond
Email: ihavenocar@aol.com
Homepage: gaysex.com
Do_You_Have_CF: Yes
Date: 11/21/02
I have CF, but most importantly I have NO CAR AT ALL cuz my family is so cheap and poor! if u feel my pain you can likely find me chatting at www.gaysex.com
Name: Darren Mathys
Email: gaycars@aol.com
Homepage: none
Do_You_Have_CF: Yes
Date: 11/21/02
I have CF, but more importantly I have a TOTALLY CRAPPY CAR. It is an EAGLE VISION and is so stupid and ugly....I can't drive more than 20 without the piece of crap breaking. I would MUCH rather own a 1987 Chevrolet Celebrity, because unlike my gay car with glasses, CELEBRITIES DRIVE IT!!!!
Name: Chris Theisen
Email: Aval246@aol.com
Homepage: None currently
Do_You_Have_CF: Yes
Date: 11/21/02
I feel so lonely and depressed sometimes, I need somebody to show me the light and the proper way of life.....it seems as if I have forgotten everything I learned, I now bathe myself in my neighbor's birdbath.....I have lost my perspective on life and fear that I am going crazy. Just because I am gay and I have CF does NOT mean I should be shunned from society
Name: Jim Thacker
Email: big_ass_baller_48@hotmail.com
Homepage: none
Do_You_Have_CF: My Son has CF
Date: 11/21/02
My son has been HIV positive for 3 years now. Sometimes I felt like killing him to take him out of his misery ut thought better of it.....sometimes i get so depressed so PLEASE E-MAIL ME IF YOU SHARE MY FEELINGS
Name: Jim Thacker
Email: big_ass_baller_48@hotmail.com
Homepage: none
Do_You_Have_CF: My Son has CF
Date: 11/21/02
I am so depressed because of my son's illness.......Sometimes I just felt like killing him to prevent him from suffering, but i decided not to
Name: Donald Malcon
Email: malcon@aol.com
Homepage: www.nfl.com
Do_You_Have_CF: Yes
Date: 11/20/02
I have been HIV positive for 3 years now. I aquiered the disease from my dog Skippy. He was a good dog and he liked me and loved to hump my leg. So on one rainy night we did the bad tging (sex) and now I am HIV positive.
Name: Steven Kovalchik
Email: soval25@yahoo.com
Homepage:
Do_You_Have_CF: Yes
Date: 11/20/02
i like this website alot b/c it helps me deal with my many problems. PLEASE e-mail becasue i like to talk to people online becasue i have no friends
Name: Private
Email: Private
Homepage: none
Do_You_Have_CF: No
Date: 11/14/02
We are doing a sreport in science and i chos cf for my topic.
Name: Becky
Email: beckyboo86@hotmail.com
Homepage:
Do_You_Have_CF: No
Date: 11/13/02
I think this is a great web page. i have two friends with cf, Gemma who has passed away ( oct 2001) and Clair currently finishing year 12. this site helps understand cf. Good job and i hope you keep telling people about cf
Name: Amanda Faust
Email: Amanda_13_2005@yahoo.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 11/11/02
I can feel your pain for some of the mothers and fathers who have childern with CF.2 years ago on mothers day my boyfriend died of cf. it was shocking to me and hurtful. My blessings go to all of you.
Name: joanne
Email: stuarthutchison108@msn.com
Homepage:
Do_You_Have_CF: My Cousin has CF
Date: 11/06/02
i would like to talk to someone as i am doing a project on cf at college
Name: Autumn Cheek
Email: autumncheek2002@yahoo.com
Homepage:
Do_You_Have_CF: My Son has CF
Date: 11/04/02
My son was diagnosed with CF on June 20 of this year and he will be 2 on Dec. 1 of this year. I am exausted with all the neub treatments and oral meds. Can CF patients live a normal life without all the medications. For one they affect his appetite and make him really hyper. Please help! I am a single 22 yr old mother and can use some support. I don't know what to do.
Name: Melissa Roiger
Email: mjroiger@hotmail.com
Homepage:
Do_You_Have_CF: My Brother Has CF
Date: 10/30/02
Name: Queva
Email: queva@clubi.ie
Homepage: none yet
Do_You_Have_CF: Yes
Date: 10/29/02
So Far the best site i've seen on the Subject.
Name: Shannon
Email: comet026@aol.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 10/25/02
HI I am a shannon. my 12 year old boyfriend has cf. I know alot about the desease already because my cousin has it aswell. Tony (my bf) as I said is 12 years old. I on the other hand am 2 1/2 years older(15) them him. a lot of people think that it is discusseding. but we both know that we are in love with each other. I mean lets get real if you weren't in love with some would you go out wit them and be mad fun of. I don't think so. when I see him I dun see his age I see him. he has been though in his life not even having anything to do with cf. And I swear that he is wize and know more about like them most 30 years old do. so I was just wondering if any people out there has the same thing going on as I do whether your the person with cf or not. Also if there are any sajustions as to how I can make him feel special please some one answer me Love shannon<3
Name: Amanda Weber
Email: Fariy_16_1985@yahoo.com
Homepage: na
Do_You_Have_CF: My Brother Has CF
Date: 10/24/02
Well my brother is 10 and he has been going to the hospital alot. Just last week he was spitting up blood. I was reading the other things how could I go about getting him a wish? He play hockey and he is very smart I love him very much. He is the joy of my life. I just want the best for him. He has to go in the hospital next week for about 2 weeks. Just prey for him and god will take care of him.
Name: Annie
Email: n/a
Homepage: n/a
Do_You_Have_CF: No
Date: 10/22/02
Hi Yancee, I am doing a project on Cystic Fibrosis at University. I have enjoyed reading all about you and wish you well in your life. Thank you for allowing me to have an incite into your daily living. Live each day to the full and enjoy.
Annie
Name: Zoe Williams
Email: zoemarie80@hotmail.com
Homepage:
Do_You_Have_CF: No
Date: 10/21/02
I am an English Medical Student currently researching and studying the social effects that CF has on its patients.
Name: Hali
Email: Shellhause@charter.net
Homepage:
Do_You_Have_CF: No
Date: 10/20/02
I am currently a student studying child life. I was looking for some information that would help me with my career. Thank you for sharing this information with me!
Name: Tammy
Email: tammyfischer2001@yahoo.com
Homepage:
Do_You_Have_CF: My Daughter Has CF
Date: 10/18/02
Thank you so much for sharing your life with us! My daughter Brittany has Cystic Fibrosis, and doing well. She just recieved her wish from "Make a Wish Foundation." She attends a public school full time, and participates in gymnastics. My advice to parents of a CF child is, keep them busy! When you have bad days, let them "sleep it off". Don't treat them different or they will feel different, Stay up with their treatments and meds, love them dearly. God Bless to all you with CF and the parents and friends that care for them! E-mail me anytime.
Name: friend
Email:
Homepage:
Do_You_Have_CF: No
Date: 10/14/02
I am glad to know that you are so positive and so willing to share information on cystic fibrosis with so many others. You are an inspiration to us all.
Name: Doug Rogers
Email: dougfl50@hotmail.com
Homepage:
Do_You_Have_CF: Yes
Date: 10/08/02
My name is Doug Rogers, I live in Sunrise Florida and am 51 years old. Soon to be 52 in November. I was reading your about me section and read the part about you taking IV treatments at home. In March of this year I had a serious bout with a lung infection and had to take IV treatments to. I am a computer consultant and could not afford sit in a hospital for two weeks and loose that much time from work. Luckly, my doctor found a company where I live in Florida that allowed me to take my IV treatments using a portable pump that I carried on my belt. They installed a Pic line just like you. This was the first time I had had a Pic line and when the nurse told me how far they had to put it in my arm I almost fainted. After the Pic line was in the nurse hooked up the IV bag to the pump. It gave me my treatments every six hours and the nurse came to my home each night around six to replace the IV bag and check the batteries. The IV bag and the pump fit in a pouch that I carried like a fanny pack. It was better than sitting in the hospital for two weeks or having to have an IV by a nurse every six hours. The best part was I did not have to miss my work. Also it was cheaper for my insurance company since I only had to have one nurse visit per day. Next time this kind of thing becomes necessary for you (hopefully not for a long long time) check with your doctor and see if this kind of thing is available to you.
Name: margaretrequejo
Email: www.margaretrequejo@yahoo.com
Homepage: minnie mouse
Do_You_Have_CF: My Friend has CF
Date: 10/05/02
my friend says that she just found out that she has cf and she wants to have prayer to her and can chat to her on www.elizabeth78704@yahoo.com it be good for some pleages for her and family
Name: margaretrequejo
Email: www.margaretrequejo@yahoo.com
Homepage: minnie mouse
Do_You_Have_CF: My Friend has CF
Date: 10/05/02
my friend says that she just found out that she has cf and she wants to have prayer to her and can chat to her on www.elizabeth78704@yahoo.com it be good for some pleages for her and family
Name: margaretrequejo
Email: www.margaretrequejo@yahoo.com
Homepage:
Do_You_Have_CF: Yes
Date: 10/05/02
Name: Shelly
Email: iiweartyezi@aol.com
Homepage: www.angelfire.com/retro/krud.html/shyt.html
Do_You_Have_CF: No
Date: 10/03/02
I think it's awesome you made this webpage. :o) It's amazing that you strive to lead your life to it's fullest.
Name: Connie
Email: cuandgb@lisco.com
Homepage:
Do_You_Have_CF: My Daughter Has CF
Date: 09/26/02
Name: Tenisha Howard
Email: thoward@co.greene.nc.us
Homepage:
Do_You_Have_CF: No
Date: 09/25/02
I am a socialworker and I am working with a family who's son has cf. I decided to get on line and learn about it.
Name: Patricia Haught
Email: angelives4ever84
Homepage: no sorry
Do_You_Have_CF: Yes
Date: 09/21/02
hi i am 17 almost 18 years old and i have cf i found out i had it when i was 2 months old i have been hospitalized over 100 times i have had a g-tube and a portacath i have been told i was going to die a lot and i am still here and i will keep fighting tell the end and i cant fight any more if any one wants to talk to me about cf i will be there for you
Name: Cody
Email: watashiwa937@yahoo.co.jp
Homepage:
Do_You_Have_CF: No
Date: 09/20/02
I, Like a few others in you guestbook am doing a research project on Cystic Fibrosis. Good Job on the website keep it up. It had a lot of information I needed. Stay well!,
Cody Rogers Dallas,Texas
Name: Brittani
Email:
Homepage:
Do_You_Have_CF: No
Date: 09/09/02
I really enjoyed your web page. I am currently doing a research report on Cystic Fibrosis and your information was very helpful. Keep adding information to it. Thanks a bunch!
Name: Jason Turner
Email: jastur1@bellsouth.net
Homepage:
Do_You_Have_CF: My Daughter Has CF
Date: 09/07/02
For one I would like to say your website is great. My wife and I just found out our babygirl which will be born in January will have CF. my wife and I are both carriers of the DELTA F508 gene. We were told this was a bad combination. If any one has or knows of anyone with the same please E-mail me. Thanks Jason
Name: Paula
Email: pjpainting@msn.com
Homepage:
Do_You_Have_CF: No
Date: 09/04/02
My 5 year old son's best friend has CF . His mother was told yesterday that her son probably wouldn't make it to 20 years old . Needless to say , we are all upset .But it sounds like you are doing great and I enjoyed your site immensly .Thank you .
Name: MYRA BURCH
Email: burch@cysticfibrosis.zzn.com
Homepage:
Do_You_Have_CF: No
Date: 09/04/02
I JUST LOST A NEICE YEAR HALF-AGO AT THE AGE OF 29 WITH CF. THERE NOT A DAY GOES BY I DON'T THINK ABOUT HER. SHE WAS FULL OF LIFE AND ENJOY EVERY DAY TO THE FULLEST. THERE NOT A DAY THAT I WISH SHE WAS WITH US TO TELL HER I MISS HER AND I LOVE HER. I WENT TO HER MOM'S HOUSE SINCE I HAVEN'T BEEN YEAR HALF-AGO IT STILL HARD LIKE SHE BE THERE LAUGHING AND TALKING. BUT I THANK GOD WE HAD HER LONG AS WE DID. GINGER WE LOVE YOU AND MISS YOU ALWAYS.
Name: Theressa Oakenfull
Email: aai@bigpond.com
Homepage:
Do_You_Have_CF: My Brother Has CF
Date: 09/03/02
My brother in laws has today been told his 6 week old daughter is suspected of having CF and is to be sent away for further testing. Initial blood tests indicate Courtney Lee may be a sufferer and I have logged on today to try to understand what the family may now have to face
Name: Ashley Brooker
Email: Ashleynicole143@hotmail.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 09/01/02
I just wanted to say that I hope everyone is doing ok that has CF. And if you need anyone to talk to you can email me and I will talk to you. I am really friendly and if you want to talk to someone who does have it talk to Tyler Smith. That is my really good friend and I know that he will be willing to talk to anyone anytime! Thanks, take care!
Name: Beth Thomas
Email: Bethtrn@yahoo.com
Homepage:
Do_You_Have_CF: No
Date: 08/28/02
I found your site by surfing the web. I am a school nurse and have a child with CF that will be entering kindergarten this year. I want to help the school staff to understand the disease in the best way possible and I would like for my student to feel good knowing that someone understands and wants to help her when needed. I liked your site very much. Thank you. Beth Thomas RN, NCSN
Name: rani
Email: ransta_01@hotmail.com
Homepage:
Do_You_Have_CF: My Cousin has CF
Date: 08/28/02
im doing a research assignment on CF, as my cousin has the disease and he is the same age as me. i just wanted to really know the sorts of things he has to go through and more about the disease.
Name: Barbara Leyva
Email: GermanRN@aol.com
Homepage: none
Do_You_Have_CF: My Daughter Has CF
Date: 08/24/02
Name: Marc Wellsted
Email: wellsted@eftel.com.au
Homepage:
Do_You_Have_CF: My Daughter Has CF
Date: 08/23/02
Hi Yancee, Just read your web page and wanted to thank you for creating it. I found out yesterday that my 3 day old daughter has CF and need to learn all apects about this disease. A most important bit of information that I found from your site was that even choosing a more common name for our baby may need to be considered. I don't have CF but even I remember being teased about my name at school. Thanks again. Marc (Marcus) Perth, Australia.
Name: Joanne Addison
Email: JoanneAddison3@aol.com
Homepage:
Do_You_Have_CF: My Son has CF
Date: 08/23/02
I have a 7 1/2 month old son with CF (and 2 older daughters who don't). I'm having a lot of trouble dealing with the reduced life expectancy aspect of CF and although this web-site give me some hope it's also very worrying reading about early deaths. I'd love to be in contact with anyone in similar circumstances or adult CF sufferers who could give me their point of view. Great site, Thanks from Joanne in Somerset, England.
Name: April Catron
Email: Kentucky_hottie18@yahoo.com
Homepage:
Do_You_Have_CF: Yes
Date: 08/22/02
I'm 18 years old and was diagnosed with cf at the early age of 2 months old. I have been in the hospital literaly over 100 times in my life and have lost some very good friends also with cf. If anybody wants to write you got my e mail.
Name: Dave
Email: dcbaumann@hotmail.com
Homepage: www.geocities.com/pimpwagon2.geo/vwframes.html
Do_You_Have_CF: Yes
Date: 08/21/02
Im just out here looking for some good info to show my fiance, to let her know what to expect from the disease. My stats: 23yrs. Male CF - (R117h and F508 Genes) - But very fortunate. I've been blessed with very good health compared to what it could be. No Pancreatic insufficiency, and never hospitalized. Only occasional meds. Nice site.
Name: danielle carpentier
Email: dlcarp_77@hotmail.com
Homepage:
Do_You_Have_CF: Yes
Date: 08/19/02
Name: Amanda Briggs
Email: sonyabri@aol.com
Homepage: N/A
Do_You_Have_CF: Yes
Date: 08/18/02
Hi!! my name is Amanda, as you have probably read already. I was diagnosed with CF when I was 11 days old, I am now a pretty healthy 18 year old. Though I maybe healthy now, but next month I could be back in the hospital. You just never know, that's what I hate the most. You never know what could happen tomorrow with CF. I also have an older brother who has CF, he's 21. Not doing that great, but still here. I don't know if you saw the movie, Alex. But right before it aired, I was two at the time, my brother and I were on the news as examples of what children with CF go through on a day to day bases. Of course, I don't remember, buit my mom taped it, and I watch it all the time, feeling closer to Alex, for I did sort of promote the movie. Even I don't know Alex, she is my motovation to keep going, even with having this horrible disease.
Name: Amanda Briggs
Email: sonyabri@aol.com
Homepage: N/A
Do_You_Have_CF: Yes
Date: 08/18/02
Hi!! my name is Amanda, as you have probably read already. I was diagnosed with CF when I was 11 days old, I am now a pretty healthy 18 year old. Though I maybe healthy now, but next month I could be back in the hospital. You just never know, that's what I hate the most. You never know what could happen tomorrow with CF. I also have an older brother who has CF, he's 21. Not doing that great, but still here. I don't know if you saw the movie, Alex. But right before it aired, I was two at the time, my brother and I were on the news as examples of what children with CF go through on a day to day bases. Of course, I don't remember, buit my mom taped it, and I watch it all the time, feeling closer to Alex, for I did sort of promote the movie. Even I don't know Alex, she is my motovation to keep going, even with having this horrible disease.
Name: jessica beasley
Email: jay1o124@aol.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 08/14/02
hey eric good luck love you always jessica
Name: jessica beasley
Email: jay1o124@aol.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 08/14/02
love you eric n
Name: Travis Anderson
Email: livingwithcf@yahoo.com
Homepage:
Do_You_Have_CF: Yes
Date: 08/12/02
I have CF and am in the middle of a lung infection right now. I am 17 and have been pretty lucky so far. (Only been really sick once)
I haven't lost any friends to CF, although my best friend was killed in a car-train accident last year. That was so sudden. (I always thought I'd be the one to die first).
The one thing I hate is taking all those pills. I feel like a freak when I have to swallow them in front of everybody. At least now in HS I can self-medicate and not have to go to the nurses office all the time.
Name: Tina Nadeau
Email: romantic_lace@hotmail.com
Homepage:
Do_You_Have_CF: My Son has CF
Date: 08/08/02
I just wanted to take the time and say BRAVO! I am so happy that you have made this wonderful site to inform people about cf. My son is 9 and has cf,and it is through actions like this, that will increase his joy and happiness in life. Sites like this will help people understand him and others with cf. They will now know that having cf does not make you different or strange. THANK YOU!!!! from tina and warren (my son)>>>>> best wishes and good health
Name: katherine Leiva
Email: dunkelheit@tupacnet.org
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 08/06/02
Thank u so much for your page it made me understand a little bit more about this... Keep on doing the great job u r doing... Katherine
Name: Tracey Gavin
Email: tracey.gavin802@fsnet.co.uk
Homepage:
Do_You_Have_CF: My Son has CF
Date: 08/03/02
My son is only 2yrs old and we have moved from South Africa to England in the hope that his medical treatment will be better. Thank you for sharing your life with us, it's encouraging to know there are people like you doing well with CF.
Name: Dee
Email: deette_pitt@hotmail.com
Homepage:
Do_You_Have_CF: My Son has CF
Date: 07/31/02
Just wanted to say, This site is wonderful. My son is now 20 and is doing ok.
Name: Brandon Lee Gillis
Email:
Homepage:
Do_You_Have_CF: Yes
Date: 07/27/02
Name: Laura
Email: mslaura99@hotmail.com
Homepage:
Do_You_Have_CF: No
Date: 07/25/02
I just watched "A Wedding Story" about a girl who has CF and her parents were talking about her spirit concerning having CF. We wanted to get info on what this condition actually entails. Thanks a lot for this good info and all best wishes!!!!!!
Name: Linda Kaye Crouch
Email: linda.crouch@worldnet.att.net
Homepage:
Do_You_Have_CF: No
Date: 07/24/02
Alex was a lovely child. It's no wonder God chose to take her at such a young age. I would have traded places with her. She wanted so much to live, and I think that she is lucky to be one of God's littlest angels. People think that I am crazy to wish that I had gone to Heaven before I was 18 or 20, but that is the way I feel. If they could have been in my shoes, no doubt they would feel the same way. I would trade places with any child who is in Heaven, no matter what the cause of death was, i.e. CF, murder, car accident, leukemia etc. But it was not to be. God be with all the families of these children.
Name: Gregory Panzarella
Email: thegregman@hotmail.com
Homepage:
Do_You_Have_CF: Yes
Date: 07/22/02
IAM 25 YEARS OLD FROM ORANGE COUNTY, NEW YORK AND CYSTIC FIBROSIS HAS ALWAYS STAYED ON THE BACK BURNER OF MY MIND. THE HELP OF SUPPORTIVE PARENTS AND A WONDERFUL TEAM OF DOCTORS AT ST VINCENT HOSPITAL IN NYC, HAS ALWAYS MADE CF SEEM LIKE A CHALLENGE THAT COULD EASILY BE OVER COME. HERE IS A CHALLENGE!!!! I AM A NY STATE TROOPER, I SURVIVED A SEVEN MONTH BOOT CAMP IN ALBANY NY AND WOKE UP AT 4AM EVERY MORNING TO REACH MY GOAL. I DID IT!!! NOBODY TOLD ME THAT I COULDN'T DO IT!!! I AM PROUD TO SAY THAT I AM THE FIRST MEMBER OF THE NEW YORK STATE POLICE TO EVER HAVE CF.----THE MIND IS MUCH MORE POWERFUL THEN THE BODY!!!-----------GREG
Name: Lee smith
Email: leesmith0314@yahoo.com
Homepage:
Do_You_Have_CF: Yes
Date: 07/16/02
I have cf and i am not doing so good right now i am getting put on a lung transplant list here shortly i have to go in to the hospital for a tune up third time this year. I am now trying to start a center to help cf patients anf familys some wear for them to go when they need advice. Also the center will have all the information about cf and doctors and all that stuff. I would like for people to e-mail me stuff about how your dealing with cf and give some advice to me so that if i get this center started i can us that info that you have given me if that is alright with you. I also would like to know if any of you are doing home school, i am wanting to do homeschooling and i can't realy afford it just wanted to know if there is something out there that can help me do so.please contact me!
Name: Sally Croger
Email: Sally.Croger@students.dmu.ac.uk
Homepage:
Do_You_Have_CF: No
Date: 07/15/02
Thanks alot for giving me the chance to understand the feelings of a person with CF. I am currently writing an assignment on this topic for my nursing course and your page will be of great use. take care from Sally.
Name: Tyler Smith
Email: TIELR2U@aol.com
Homepage:
Do_You_Have_CF: Yes
Date: 07/07/02
Just want to make sure that everyone is ok. I am 20 and doing great I hope all follow. if you need anything you better email. I am somewhat of a helpful guy, so dont worry i do not bite. Thanks and i hope the best for you and the families.
Name: vikki
Email: www.don'thave1@hotmail.co.uk
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 07/04/02
i really don't know what 2 think 'bout cf but i have been on several sites in an attempt 2 find out what it is like for my friend who manages to b cheeky and funny all throughout everything. i hope he will be okay. i was going 2 put that i hope he gets better but that is stupid 'cause i know that he is very rapidly getting worse.
Name: charley bacon
Email: cabacon@ix.netcom.com
Homepage:
Do_You_Have_CF: Yes
Date: 06/25/02
Nice site. I am a 33 year old adult with CF, diagnosed at birth. Although dealing with the ordinary ups and downs of the disease can be a pain, I enjoy a relatively average life. Much of my good fortune is due to the hard work of my parents thru my early adulthood. As for my current life, I receieved a Graduate Degree at the age of 22 and currently work as a professional in the banking industry. I typically go into the hospital or do home IV once a year.
Name: Rebecca Ashcroft
Email: luv_u_lots3@hotmail.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 06/25/02
Love you Rodney xxxxx
Name: melissa Ligonis
Email:
Homepage:
Do_You_Have_CF: Yes
Date: 06/20/02
Hello, my name is Melissa Ligonis and i have Cystic Fibrosis. I am 17 years old and i feel that i cant talk to any one about it. MY friends know i have it but dont know much.I have just moved to Perth from Melbourne end its weird starting fresh.I have a fear that i'ii never have kids cause my doctor said it will be hard. Do you have kids?. well thanks for listening and hope some one out there feels the same that i do!
Name: Jennifer
Email: pismom28@aol.om
Homepage:
Do_You_Have_CF: No
Date: 06/20/02
My beautiful niece has cystic fibrosis. Your site helps me to understand more through the eyes of someone who is going through it rather than some technical medical website. May God Bless you always and my niece and all out there who has this disease. Thank you Yancee and keep up the good work. By sharing your experience you help those with CF and those who love someone with CF.
Name: Kim
Email: dptypunkin3@aol.com
Homepage: none
Do_You_Have_CF: My Daughter Has CF
Date: 06/18/02
my daughter is 8 and has CF....some days I have a hard time dealing with the reality of her having it...
Name: Mytrece Brown
Email: mellow_eyes@yahoo.com
Homepage:
Do_You_Have_CF: No
Date: 06/06/02
I'm an American working for a CF Center in the UK. I found your page very clear and informative for those with little knowledge of CF's. Continue to take care of yourself. Best Wishes and Forever Hopeful, Mytrece Brown Health Care Assistant
Name: tegan
Email:
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 06/05/02
my friend died of cf when she was 19 i was 11 at the time but i'm now 15 and just got a school project on cf i relized i diden't understand what cf i would like to thank you for helping me understand not just what cf is but how she might of felt having to live with it.
Name: Cheryl
Email: cherylakashortee@hotmail.com
Homepage: nope dont got one
Do_You_Have_CF: My Cousin has CF
Date: 06/03/02
Okai well i dont have CF but one of ma cuzins just passed away with cf being the cause of it she was only 17 years old and like a sister to me...now i find out ma other cuzin has CF but hez isnt as bad but he does have it. Well i'm doing a project at school and i chose to do it on CF. So thnx very much your site has helped me out alot. Please e-mail at ne tyme
Name: KEITH
Email: KWJONES2001@AOL.COM
Homepage:
Do_You_Have_CF: No
Date: 06/01/02
HI MY FRIEND HAD CF AND I HATED EVERYDAY AND I STILL DO,SHE PASSED AWAY WITH IT ON MAY6TH 2001 HER NAME WAS AMANDA STEPP,SHE WAS ONLY 17YRS OLD SHE WAS AN AVERAGE TEENAGER,WHO LOVED TO TALK ON THE PHONE TILL 4AM IN THE HOSPITAL,SHE TOLD ME ONCE THAT IF I WAS'NT HERE TO BE WITH HERE SHE WOULD PROBALLY END UP CRYING TILL SHE WENT TO SLEEP. SHE LOVED TO HAVE FUN AND SHE NEVER GOT UPSET WITH CF,BUT SHE HATED BEING IN THE HOSPITAL MORE THAN ANYTHING.SHE WAS IN THE HOSPITAL ONCE FOR TWO MONTHS SHE CALLED ME EVRYDAY,AND NOW MY PHONE IS SILENT,AND I WOULD GIVE ANYTHING TO HERE MY PHONE RING AT 11PM OR 1AM AGAIN,I HOPE THY FIND A CURE FOR CF CAUSE I HATE TO SEE A NOTHER YOUNG PERSON DIE FROM THIS CRUEL DISEASE,I KNEW AMNDA WAS IN THE LAST STAGE IN APRIL OF 2001,CAUSE SHE TOLD ME SHE DI'NT WANT TO FIGHT IT KNOW MORE AND ASKED ME WAHT SHE SHOULD DO.I TOLD HER TO ASK GOD TO PRAY FOR HER AND LET GOD TAKE HER HOME AND SHE DID SHE SIAD BYE TO ME ON FRIDAY AND TOLD MY GIRLFRIEND KARA BYE AND PASSED AWAY ON SUNDAY AT12AM IF YOU WANT YOU CAN LEAVE A NOTE AND FLOWERS AT FIND A GRAVE.COM BECAUSE AMANDA STEPP DESERVED MORE THAN WHAT SHE WAS DEALT,IAM SORRY FOR TYPING SO LONG BUT ITS SO HARD TO HANDLE THIS AND THE MEMORIES IT HAS TAKEN FROM ME OF AMANDA, AND EVERYDAY ITS HARD PEOPLE SO LOVE THOSE WHO HAVE CF CAUSE THY NEED IT AND YOU NEVER KNOW ONE THY WILL BE GONE FROM YOU LIKE THE BREEZE FROM THE WIND
Name: Candace Robinson
Email: teddybear2114@yahoo.com
Homepage:
Do_You_Have_CF: No
Date: 05/31/02
I don't have CF but really like your web site. It has helped me alot with everything i need to know. I'm doing a project for school and i came here and found some really amazing things on CF. This may not be what you want to hear but i thought maybe i should tell you. Thanks for being there. Your truly, Candace
Name: xavier tragant
Email: xaviertm@coac.net
Homepage:
Do_You_Have_CF: My Daughter Has CF
Date: 05/30/02
Name: Colleen
Email: lonicat12@yahoo.com
Homepage:
Do_You_Have_CF: No
Date: 05/30/02
Hello there! My name is Colleen and ever since I was 11 years old,I have been a volunter for the cf community. It started when I read a book about a litte girl named Alex Deford! I just couldnt forget about Alex,and decided to help. Being involved has given me the chance to make some pretty nice friend's. I would love to make friends online. I go to the local librar at least twice a week to check my e mail. My other interests include babysiting, reading, writing, arts and crafts, spending time with my boyfriend David, and spending time with my two cats, Fluffy and Loni. I also know what it is like to have an illness, as I was born with a learning difference and took remedial classes in high school, and I also have a form of anemia and must be on meds , going for tests. Thanks for listening and I hope to hear from some people soon. God bless you. P.S.; My age is 24 now. I will be 25 in July.
Name: Colleen
Email: lonicat12@yahoo.com
Homepage:
Do_You_Have_CF: No
Date: 05/30/02
Hello there! My name is Colleen and ever since I was 11 years old,I have been a volunter for the cf community. It started when I read a book about a litte girl named Alex Deford! I just couldnt forget about Alex,and decided to help. Being involved has given me the chance to make some pretty nice friend's. I would love to make friends online. I go to the local librar at least twice a week to check my e mail. My other interests include babysiting, reading, writing, arts and crafts, spending time with my boyfriend David, and spending time with my two cats, Fluffy and Loni. I also know what it is like to have an illness, as I was born with a learning difference and took remedial classes in high school, and I also have a form of anemia and must be on meds , going for tests. Thanks for listening and I hope to hear from some people soon. God bless you. P.S.; My age is 24 now. I will be 25 in July.
Name: Arthur Herron
Email: arthur@herron.com
Homepage:
Do_You_Have_CF: Yes
Date: 05/29/02
I like your CF site Yancee. I'm 20 and have CF. I was recently diagnosed in August of 2000.
Name: ashten
Email: hip_chic22@hotmail.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 05/27/02
I am very happy that u have made a web sit 4 people to learn about c.f. I have 2 friend with it and i know i effect there lives greatly well good luck in the future and thank u !!! love ashten
Name: lorrayne
Email: lorrayne@hill-1955.fsnet.co.uk
Homepage: ????????
Do_You_Have_CF: My Friend has CF
Date: 05/24/02
My friend Shirley has a son Jamie who has CF and a daughter Sarah who very sadly passed away on March 29th 2002, three weeks before her 20th birthday. She was a beautiful young woman who just love life and was positive until the end. She laughed at everything and her smile lit up the room. Her brother is finding it tough. particularly as he is a sufferer as well. My friend, her mother, is in pieces. Is there anyone who could give her some hope? Is there a fellow sufferer who has watched a sibling die of this awful disease who could talk to Jamie?
God bless you all
Lorrayne
Name: marissa
Email: Marissa@CysticFibrosis.zzn.com
Homepage:
Do_You_Have_CF: Yes
Date: 05/22/02
I am 20 and was diagnosed as a baby. I really enjoyed looking at your website. I would like to hear from others with CF, so please e-mail me. Hope you all have a great, healthy summer.
Name: Ceire
Email:
Homepage:
Do_You_Have_CF: No
Date: 05/22/02
HEY, I AM DOIN A PROJECT ON CYSTIC FIBROSIS FOR MY JUNIOR CERT AND DIS SITE WOZ VERY HELPFUL.....................THANKS
Name: Aj
Email:
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 05/20/02
One of my very own friends has CF, the doctors told her that she wont live past 18, she is taking it day by day, it is very depressing to watch her try to do something because she is always coughing, she is 15 yrs old, I want to know more about CF if anyone has anything thing to share, please do?
Name: Dawn
Email: birdshere23@yahoo.com
Homepage:
Do_You_Have_CF: My Daughter Has CF
Date: 05/17/02
I am looking for someone with cf, or with a friend or family member who has cf. I would like to share stories with others, and maybe make new friends. My daughter is 6 and was diagnosed with cf at 3 months. She has been extremely healthy since, shocking her doctors and myself. I would like to know more personal experiences that others have had because all I know about cf is what my daughter has experienced, and what I've read. I'd like to hear something a little more real.
Name: Brittany Fetter
Email: angel_worth_wanting6906@yahoo.com
Homepage: ?????don't know?????
Do_You_Have_CF: My Friend has CF
Date: 05/16/02
My name is Brittany Fetter I live in Waterloo Nebraska in a 2 story apartment building. There are 3 of the buildings by the bank. I live in Apt A and my friend Lindsey Melcher lives in the apt building B. She has do these things where she lies down and her mom or dad have to put a vibrating thing on her back. She is only about 10 years old and I know that It is very hard for her. Is it true that people with CF only live until 15 years of age and if they live any longer then every year is a risk that they might die. Because she is one of my best friends. I might grow up to be a CF researcher and help find cures.
Love Always Brittany Jean Fetter of Waterloo Nebraska
Name: Brittany Fetter
Email: angel_worth_wanting6906@yahoo.com
Homepage: ?????don't know?????
Do_You_Have_CF: My Friend has CF
Date: 05/16/02
My name is Brittany Fetter I live in Waterloo Nebraska in a 2 story apartment building. There are 3 of the buildings by the bank. I live in Apt A and my friend Lindsey Melcher lives in the apt building B. She has do do these things where she lies down and her mom or dad have to put a vibrating thing on her back. She is only about 10 years old and I know that It is very hard for her. Is it true that people with CF only live until 15 years of age and if they live any longer then every year is a risk that they might die. Because she is one of my best friends. I might grow up to be a CF researcher and help find cures.
Love Always Brittany Jean Fetter of Waterloo Nebraska
Name: Jill Marie
Email:
Homepage:
Do_You_Have_CF: Yes
Date: 05/15/02
I am doing a research paper for a class and I chose to do it on something that affects my daily life. That is C.F. Thanks for creating this site!!!
Name: ashley
Email:
Homepage:
Do_You_Have_CF: Yes
Date: 05/15/02
good luck to every one who has this. i hope you all feel better
Name: angela
Email: ebhotgurl69@aol.com
Homepage:
Do_You_Have_CF: Yes
Date: 05/15/02
good luck to every one who has this. i hope you all feel better
Name: tosha
Email: hothernshawcic
Homepage:
Do_You_Have_CF: No
Date: 05/15/02
everyone that has this i wish them the best of luck
Name: tosha
Email: hothernshawchic
Homepage: no
Do_You_Have_CF: No
Date: 05/15/02
I hope everyone is feeling better, and for all yall that do have it dont give up on a cure. live life at its gratest
Name: Danica Dempsey
Email: schedore@nbnet.nb.ca
Homepage:
Do_You_Have_CF: No
Date: 05/15/02
I'm very sorry to hear that you have CF. I hope that you feel well in the future. The reason why I went to you website is because me and my friend are doing a project about CF for school. I found a lot of good information for my project on your site. Thank you very much for the information and I hope you feel better. Goodbye.
Name: Jackie
Email: NA
Homepage: NA
Do_You_Have_CF: My Brother Has CF
Date: 05/14/02
No matter wat u go through some people will go there the same stuff they did, but in a different way.
Name: Jennifer Lanzaro
Email: jenna77marie@excite.com
Homepage:
Do_You_Have_CF: Yes
Date: 05/14/02
Name: Joseph Wood
Email: Bizkit311J@aol.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 05/13/02
I just found out my friend has CF. I just surfed on to learn more about CF.
Name: Katherine
Email: stargazer163@hotmail.com
Homepage:
Do_You_Have_CF: No
Date: 05/12/02
Hello, i am a high school student and i am doing a paper on Cystic Fibrosis. I found your site extremely useful because i am making a website of my own about cystic fibrosis and was looking for some inspiration on how to separate out the many different aspects of CF. If you would like to view mine go to http://www.geocities.com/dream_gurl06071/CF_Home.html. I hope you approve. Tootles.
Name: jerri
Email: Angelsare4ever92
Homepage:
Do_You_Have_CF: My Son has CF
Date: 05/11/02
We just found out he had cf last Sept. He is 9 yrs old and I'm having a very hard time with this. We have two other children one is a carrier and the other is not. And I try to act as if my son does not have this it's like my whole life our whole life has be turn up side down. well thank you for listning.
Name: Bobbys gal 4ever@aol.com
Email:
Homepage:
Do_You_Have_CF: No
Date: 05/10/02
My boyfriend has cf this web page it has helped so much you wouldnt believe i plan on visting very often thanks again
Name: Eric
Email: ericgedi@comcast.net
Homepage:
Do_You_Have_CF: No
Date: 05/10/02
Ryan, Site looks great!! Keep up the good work. Eric.
Name: Yancee Mathews
Email: yanc@velocity.net
Homepage: This is my homepage
Do_You_Have_CF: Yes
Date: 05/10/02
Just testing to make sure it is still working. Thanks to everyone for all the messages.
Name: Bob Panzer
Email: rap1234@aristotle.net
Homepage:
Do_You_Have_CF: No
Date: 05/04/02
I volunteer at Arkansas Childrens Hospital in Little Rock one night a week. I meet a lot of kids with Cf, and I just want to say I think your website is simply fantastic. I didnt know anything about Cf until I started volunteering. I know a lot of kids need the support to help them cope with this. I would like to mention your webpage in the case it may be a big encouragement to someone. May God bless you in your life. Thank you. Bob
Name: Amy
Email: Bandcow65@hotmail.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 05/03/02
Hi, I've typed in here before and I came back to say hi and to tell anyone who wants what's been going on. My friend Kate is still in the hospital and still trying to stay strong. She's gone through a lot and still has a ways to go before she is well enough to be back home and living her normal teen life. If anyone wants to type to her or say hi she has her own web page it's: www.Caringbridge.com/mn/kateburrows Well, thanks for this web site and I will be back again some other time to say hi again. But feel free to e-mail me or go to Kate's page. But if you e-mail me, put, about CF under the subject so I don't delete it. But thanks again for this page Tracy... A M Y
Name: Tiffany Boring
Email:
Homepage:
Do_You_Have_CF: Yes
Date: 04/30/02
Name: Aj
Email: ajforaker@hotmail.com
Homepage: clovernet.com
Do_You_Have_CF: My Friend has CF
Date: 04/30/02
i have a very close friend that has CF, I think about it every day and just want to know a few things about it:My friend is living her life to the extent, the docter told her that she won't live to see 18 can you tell me why other victims that are worse than her live a longer life, shes gaining weight like she should and seems to be very healthy and active, it just dosent make sence to me, what did the docor tell you and was he wrong??, is it possible that she can overcome the disease. what can i do as a friend to help her, is there anything from my body that will help her??
Name: andrew
Email: agsteed@hotmail.com
Homepage: none
Do_You_Have_CF: No
Date: 04/27/02
interesting to read about peoples different cases, also that some get cured. May God Bless all those who search for a cure and that they find one soon. I am from Wales in UK. GOD BLESS. All of you are in my prayers.
Name: John Weber
Email: pilefmj@hotmail.com
Homepage: www.geocities.com/pilefmj
Do_You_Have_CF: My Friend has CF
Date: 04/26/02
I have known Yancee for about 5 years. Met him in college. He is one hell of a great guy! Say hi to the wife for me. We also play paintball together. Lots of fun.
Name: Taryn
Email: Hengh@yahoo.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 04/26/02
I just wanted to say that my friend Erin had CF. She died only a couple of months ago and it was a tragedy her family, friends, and husband. She was only 22 and I feel incredibly sad that she will never be around again. She is of course always in our hearts and prayers. I pray there is a cure soon!
Name: Karyn Wiggill
Email: karynwiggill@hotmail.com
Homepage: roboronline (intranet)
Do_You_Have_CF: No
Date: 04/26/02
I want to find out more about CF and its effect on a person employed in a manufacturing company.
Name: Jessica
Email: Taniya411@cs.com
Homepage:
Do_You_Have_CF: No
Date: 04/23/02
Yancee: I don't know you but I will pray for you and all other CF patients. You will always be in my heart.
Love always, Jessica
Name: Ty
Email: Rage_2000@email.com
Homepage: www.geocities.com/rage_2013.html
Do_You_Have_CF: No
Date: 04/22/02
Thanks for help with my report. Best of luck.
Name: Matthew
Email: gregandmandy@bigpond.com.au
Homepage:
Do_You_Have_CF: Yes
Date: 04/21/02
Hi, my name is Matthew and i'm 10 years old, and i'm looking for a pen pal! I like soccer, reading Harry potter going to the movies, but i would like some one who has cf to talk too. I live in Austraila, and have a sister who doesn't have cf. Bye from Matthew
Name: LeAnne west
Email: Rooster85us
Homepage:
Do_You_Have_CF: My Son has CF
Date: 04/20/02
My son is 16 now and healthy now.
Name: matthew ellsworth
Email: ells_33@hotmail.com
Homepage:
Do_You_Have_CF: No
Date: 04/19/02
I just love you guys. I comend you people for you work and hope you have more medical break throughs.
Name: morgan shaw
Email: hazel2005@msn.com
Homepage: msn
Do_You_Have_CF: No
Date: 04/17/02
Your page is really helpful my piano teacher had CF but he did not live to teach me anymore and i was heartbroken I commend you on speaking out about CF my mom works at Emory Un and she used to work with people that had CF and i saw how hard it was for her to see them pass on well like i said thanks
Name: Lady
Email:
Homepage:
Do_You_Have_CF: No
Date: 04/17/02
i want to be a doctor, so i always looks up diseases. i thought this was a very interesting disease. iam thinking of being an oncoligist though, but that scares me because my aunt is a nurse and she told me i'd have to go though about 16 years of college.
Name: Randy Peterson
Email: PJax5@comcast.net
Homepage:
Do_You_Have_CF: No
Date: 04/17/02
Name: Jane
Email: Jowens@mail.wilton.k12.ia.us
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 04/16/02
I am a teacher who came across your page looking for information about CF. One of my students has been hospitalized for the last couple of weeks. I like the termonolgy you used for this - "tune up". I will use this to explain to the rest of the class! Thanks for your help!
Name: Taylor Reese
Email: perfectstar50@hotmail.com
Homepage: ww.hotmail.com
Do_You_Have_CF: Yes
Date: 04/16/02
Ia m 11 years old. i am looking 4 penpales who do not live in the usa.i live in tennessee.i l ike acting singing an dancing.i have 2 cats.i do not care what gender u r.i hope that u r around my age. i will b 12 this year.i will reply 2 everybody! :) well so long.
Name: Eirikur Egilsson
Email: Lord02@mi.is
Homepage: www.nemendur.ru.is/eirikure
Do_You_Have_CF: Yes
Date: 04/16/02
Nice page ... I just got Pseudomonas for the first time now, I'm taking my first dose of "Ciflox" ...
Do you recommend anything against Pseudomonas ?
I hope I won't have it for the next sample I give.
Eirikur, Iceland.
Name: Alejandra
Email: alejandratb@hotmail.com
Homepage:
Do_You_Have_CF: No
Date: 04/15/02
I really enjoyed your site, and have learn from it. thank you.
wish you the best :)
Name: Heather
Email: wild99life@yahoo.com
Homepage:
Do_You_Have_CF: Yes
Date: 04/15/02
Yancee, Hi, my name is Heather. I am fifteen years old. I was diagnosed with CF at the age of three. It was a bas case to begin with. Most of my childhood was spent in the hospital. Kids used to make fun of me being sick and would not go near me. But that changed when I turned ten. I was in the hospital and the docter told me I needed a double lung transplant or I would die by the age of fifteen. So I said,"Lets do it!" I loved doing any new thing that could save me. I wasn't scared. That when all the kids became nice to me. The school did several fund raisers for me. When I turned twelve in June of 1999, I got my lungs. It's great! Thats what I call a real first breath. There are bad effects for a teenage girl. My antirejection medicine caused my face to puff up, my arms to get hairy, and the worst, diabeties. That caused me to get glasses. But, I don't care. Life is to precious to care about how you look and all you've been through! You should just love what you have. I pray you may never need a transplant, because that means your near death. And I never realized taht untill after my transplant. Heather
Name: Jamie Wilson
Email: jayjetplane33@yahoo.com
Homepage:
Do_You_Have_CF: No
Date: 04/12/02
I am doing a report on CF for my biology class. Thank you for sharing your information with me.
Jamie
Name: Ashley Miller
Email: BigMiller38@aol.com
Homepage:
Do_You_Have_CF: No
Date: 04/11/02
I don't have CF but i am doing a report on CF for my school Bology class and i needed to know what it is like to live with CF this site helped me and i'm very happy you can make this website and i'm happy that you are able to get along well with other people thanks for all the school help with your website Ashley Miller, Kentucky
Name: tanner peterson
Email: tep224@aol.com
Homepage:
Do_You_Have_CF: No
Date: 04/09/02
Name: carol dustin
Email: ldcd11172@aol.com
Homepage:
Do_You_Have_CF: No
Date: 04/08/02
your site is so encouraging. my granddaughter has cf and we are just learning about the deaise. she is 2 and also hearing impaired so there is a double dose of trianing. she is signing and learning to communitacte . she is doing very well. the one thing we have learned is that she doesnt knowlife any other way. we are the ones who have to adjust. as we learn about levels and meds we will better be able to meet her needs. she is so tiny. i will continue to look at your site to gain knowledge and information. thank you for your openness. carol dustin
Name: Michael J Dugan - Pittsburgh, PA
Email: MJDoog@adelphia.net
Homepage:
Do_You_Have_CF: My Son has CF
Date: 04/05/02
Name: Alyssa Ryan
Email: alyr0215
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 04/04/02
hello everyone. I think this website is wonderful. My boyfriend has CF and it is nice to read about new treatments they are developing and ways of coping. At this time he is doing fine and we are both living a good life together. thanks for listening.
Name: Alyssa Ryan
Email: alyr0215@aol.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 04/04/02
Name: Jeanine Peters
Email: jeanine.peters@telus.net
Homepage:
Do_You_Have_CF: No
Date: 04/01/02
Hi Yancee,
Iam a 30yr. old university student and single mom of three boys, in Nanaimo, British Columbia, Canada. I am going to school to become a teacher's aide or education assistant and I will be working with special needs in the classroom. Right now I have an assignment regarding cystic fibrosis and I will need to share with my peers what I have learned from my research. I have read hours of information on the internet hoping to gain a better understanding of what cystic fibrosis really is. I came across your website and appreciated your personal story. I want to thank you for turning something so difficult into a positive by teaching and sharing with us all. Bless you for your time and freedom to give. If you get a chance I would love to hear from you as person who now gone through the education process, what it is you would have people like myself, and other educators understand about cystic fibrosis. If not, that's okay. Keep on the good fight and may your life be healthy and long as you continue to encourage others! Sincerely, Jeanine Peters
Name: Jeanine Peters
Email:
Homepage:
Do_You_Have_CF: No
Date: 04/01/02
Name: Rita
Email: toone@cyberbeach.net
Homepage: none
Do_You_Have_CF: My Cousin has CF
Date: 03/27/02
We just found out she has it and she is only 3months old.
Name: Mandy
Email: rmfisch@yahoo.com
Homepage: yahoo
Do_You_Have_CF: No
Date: 03/26/02
My daughter is going to be tested for CF next month, and I was just wondering what the quailty of life a person with CF has. Your web site has been very helpful. Thanks
Name: Jamie
Email: jbraddock01@attbi.com
Homepage:
Do_You_Have_CF: No
Date: 03/25/02
I came to your site to learn about Cystic Fibrosis, I am doing a project on it. I think you are a very brave person!
Name: suzanne
Email: student281@blueyonder.co.uk
Homepage:
Do_You_Have_CF: No
Date: 03/25/02
id be greatful if anyone with cf could do my an articel for my assignment,im trying to show the difference between cf patients and other hospital patients when it comes to treatment.Im a student nurse i feel that a persons view with cf might have a different edge to the assignment........if anyone can help
Name: Gracie Munari
Email: mmunari@optusnet.com.au
Homepage:
Do_You_Have_CF: No
Date: 03/24/02
Rosie and I have already emailed you and look forward to hearing from you. Thanks for taking the time to read this email. Rosie and Gracie
Name: cheeky
Email:
Homepage:
Do_You_Have_CF: No
Date: 03/23/02
hi
Name: Rachel
Email: honey_bun2004@yahoo.com
Homepage:
Do_You_Have_CF: No
Date: 03/21/02
if i had a million lungs i would kill myself just to give some of these cf people a chance to live and see there children grow into healthy adults. God bless you all
Name: Rachel
Email: honey_bun2004@yahoo.com
Homepage: none
Do_You_Have_CF: No
Date: 03/21/02
Im doing a research paper for my parenting class and I choose this because Im always wanting to find a cure for everything. lol. So far this site has help me alot in finding what I need for my paper. i take medication also but for many different things that alot of people don't even know or care about. I have ADD,ADHD,ODD,and OCD and I also take medication for depression. I've been trying to learn more about what i have and how i can possibly the rest of my life with these problems and still have to take medication for them. I picked this topic because it intrested me to learn more about that way if i met any one who had it i would know what they were experiencing from these websites. Good Luck to everyone who has CF and i hope u live a long and happy life.
Name: Rachel
Email: honey_bun2004@yahoo.com
Homepage:
Do_You_Have_CF: No
Date: 03/21/02
I'm doing a research paper on Cystic Fibrosis. The reason I picked this is cuz I wanted to know it effects pregnant women and their babies. And so far it seems to be pretty nasty. But i go through alot of things myself i have a friend with cerebal palsy. so its cool i like people for who they are not for what they look like.
Name: Tracy
Email: Trcy32883@aol.com
Homepage:
Do_You_Have_CF: My Cousin has CF
Date: 03/20/02
I am doing a research paper for my college composition class. i chose cf as my topic because my cousin has it but i didn't know much about it. your information was very helpful in doing my research paper and understanding what my cousin is going through. i hope you are doing well. Love~Tracy
Name: tracy anderson
Email: tracygifford@hotmail.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 03/20/02
Just had my son,s 6 year old friend round for dinner. His mum didn't tell me that he has CF but older brother did. I wanted to know what all the pills were for. Thanks for your web site it answered all my question. Hope the future is bright for you. Regards Tracy (UK)
Name: JESSICA SALVATIERRA
Email: JESSICA_SALVATIERRA2001@YAHOO.COM
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 03/20/02
Name: JESSICA SALVATIERRA
Email: JESSICA_SALVATIERRA2001@YAHOO.COM
Homepage:
Do_You_Have_CF: My Cousin has CF
Date: 03/20/02
Name: Keri
Email: spasz67@hotmail.com
Homepage:
Do_You_Have_CF: My Sister Has CF
Date: 03/19/02
I was just looking around on sites for any cf information and i found this site. i would like to make one for my sister who has cf. is there any way you can help me? i love this site. you did a great job. hope you are well Keri
Name: Kim
Email: Lipstick369
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 03/19/02
My aunt had CF but she passed away. I nkow how it feels to lose someone very close to you and it is not pleasant. I need some coping tips before i go totally crazy.
Name: Cory Sanders
Email: CoryScott83@msn.com
Homepage:
Do_You_Have_CF: Yes
Date: 03/19/02
I have lived with CF for 18 yrs. and I am currently going to college. I am from New Mexico, where Cf is not very common. I have had to grow up being "different" and if anyone has any questions that I can answer concerning parenting, relationships, or if you just want to talk, please write to me. I love to hear from other people.
Name: teresa
Email: tnevin2002@yahoo.com
Homepage:
Do_You_Have_CF: No
Date: 03/18/02
my 3 year old granddaughter has cf. She was in the hospital last week for iv antibiotics. she is home now but has a PICC line. She is taking one antibiotic three times a day and another once a day. We are having a hard time getting her to take her enzymes. If we sprinkle them on her food she will stop eating. She was taking them by herself until she was put in the hospital,now she has quit taking them .She only takes about half of what she is suppose to be taking. If you have any ideas on how to get her to take them please let me know.You can email me at tnevin2002@yahoo.com Thank you and good luck.
Name: Brandy McKinney
Email: crackerjacks3@hotmail.com
Homepage: none
Do_You_Have_CF: My Friend has CF
Date: 03/18/02
Name: wanda
Email: wmustard@primus.ca
Homepage:
Do_You_Have_CF: No
Date: 03/18/02
i found your site very informative and very easy to read keep up the good work
Name: Brenda
Email: crslyfrm@ix.netcom.com
Homepage: none
Do_You_Have_CF: My Sister Has CF
Date: 03/18/02
My sister passed away four days ago at the age of 41. She was never in the hospital until 3 years ago. We thought she would live forever. She enjoyed every year, month, day of her life. She refused lung transplants, and waited too long to go to the hopsital this last time. Never wait too long. Never hope it gets better on it's own.
Name: cheryl
Email: seashorenurse@aol.com
Homepage:
Do_You_Have_CF: No
Date: 03/17/02
Name: mandi
Email: mmr83@hotmail.com
Homepage:
Do_You_Have_CF: No
Date: 03/15/02
i am doing a big study of the disease for my medical class,i just though i would write you to let you know that the web site was very helpful. Thanks
Name: Alberto Taboada
Email: ataboada@stx.rr.com
Homepage:
Do_You_Have_CF: Yes
Date: 03/15/02
Name: Katrina
Email: Nyteriver87@aol.com
Homepage: none
Do_You_Have_CF: No
Date: 03/14/02
PS. I would like to make freinds. I mean, if it's okay with you....
Name: Katrina
Email: Nyteriver87@aol.com
Homepage: Don't have one (poor me, lol)
Do_You_Have_CF: No
Date: 03/14/02
Hello:) I just finished reading a book called a Time To Die by Lurlene McDanile (I hope that's how you spell her name). I also read another book of hers about CF, and I was curiouse to understand the charecters better. This gave me alot of imformation and gave me a deeper understanding of what the charecters, and real people, go through. I think you're very brave to do this 'one day at a time', as you said, and not dwell on it. It's more then I could do, and I'm sorry if I sound stupid:) *Blush* Good luck in the future- Kitty Kat
Name: michelle
Email: angelchic0324@hotmail.com
Homepage:
Do_You_Have_CF: No
Date: 03/13/02
I am doing research for my anatomy class and I just want to say that this page was very helpful! i wish you all the luck in the future!~michelle
Name: Susy
Email:
Homepage:
Do_You_Have_CF: No
Date: 03/13/02
I am currently a student. I am in the process of designing some stuff for the Cystic Fibrosis Foundation and preparing myself for a speech I have to make tomorrow about CF. This is a very helpful website. God bless you all.
Name: Mandy
Email: gregandmandy@bigpond.com.au
Homepage: no
Do_You_Have_CF: My Son has CF
Date: 03/08/02
I think this is a great web site. My son Matthew is 10 and gets frustrated at times because of his cf. He would love to talk to some-one else who has cf. Matthew is a keen soccer player he likes reading Harry Potter books and he is in to playstation. Matthew has alittle sister who at times can be a pain. So we hope to hear from some-one soon. Thanks Matthew's mum.
Name: Jennifer Nakota Johnson
Email: jennifer_nakota@hotmail.com
Homepage: Don't have one sorry
Do_You_Have_CF: No
Date: 03/06/02
Well the reason I'm visiting this site is because I'm reading a book called "A time to die" By Lurlene McDaniel And I wanted to understand the main characters real feelings and the real way that someone with cf was going through. I think your web site is very amazing and from the information I got for your web site om CF has really helped me to understand what CF is and I send my best wishes out to all of those people who have CF and I wish that I could and will make a difference with this note. To all of those out there with CF I send my best wishes Thank you for your time Jennifer.
Name: emma lancaster
Email: malcolm.lancaster@btopenworld.com
Homepage:
Do_You_Have_CF: No
Date: 03/06/02
Name: Joe Zummo
Email: joez@worldlynx.net
Homepage:
Do_You_Have_CF: My Mom has CF
Date: 03/06/02
Nikki Sherry of Phoenixville PA, died Sunday Morning, March 3rd, 2002. She died of Cystic Fibrosis and was recently married in August. You can catch her wedding on TLC, "A Wedding Story." Which is on @ 3:00 p.m. weekday afternoons.
Name: Amy
Email:
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 03/05/02
I originally typed and it cut off my e-mail, so its Bandcow65@hotmail.com Under subject put: About CF, so I wont delete or block from my e-mail. Thanks
Name:
Email:
Homepage:
Do_You_Have_CF: Yes
Date: 03/05/02
Name:
Email:
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 03/04/02
My best friend has CF and iam still learning about cf but as i learn more and more it want to make me donate more and more I LOVE YOU BRITTANY
Name: Amy
Email: ndcow65@hotmail.com
Homepage:
Do_You_Have_CF: My Friend has CF
Date: 03/04/02
My Best Friend that I've known all but 1 year of my life has CF. She's been in the hospital for 2 full months now and she's trying very hard to stay strong. Its hard to see her suffer. And another thing is that we live in two completely different states. I'm out in California and she's all the way out in Minnesota. She's 17 and her brother who's about 20 also has it. Its hard to read about these things. I am doing a power point presentation on CF and I have to get more information about it. Thankyou very much for this site, and feel free to e-mail me.
Name: Amy Robson
Email: robsonam@jmu.edu
Homepage:
Do_You_Have_CF: No
Date: 03/04/02
This site has been very informative for a research paper I am writing about CF. I do not know anyone personally who has the disease, but I have a niece with a congenital heart defect that gives her many of the same symptoms and treatments as CF. My thoughts and prayers are with you, and I will continue to pray for a cure!
Name: linda Jones
Email: james.jones210@verizon.net
Homepage:
Do_You_Have_CF: My Son has CF
Date: 03/02/02
I'm looking for a chat room to share my experiences of life with a child who has c.f.
Name: stacie henry
Email: fxr96@hotmail.com
Homepage:
Do_You_Have_CF: Yes
Date: 03/02/02
im 26 years and need some friends with cf to talk too. Ihave been very lucky not being sick till 4 years ago. They say my cf is progessing is there hope? Stacie Henry
Name: FAITH
Email:
Homepage:
Do_You_Have_CF: My Daughter Has CF
Date: 03/01/02